Mindfulness for ALD Caregivers

Mindfulness for ALD Caregivers

Providing constant care for a patient with a chronic disease, such as adrenoleukodystrophy, can be emotionally draining and stressful. However, a practice called mindfulness may help caregivers to cope with difficult circumstances.

What is mindfulness?

Mindfulness is the practice of being aware of your thoughts, feelings, bodily sensations, and surroundings. Rather than rehashing the past or imagining the future, mindfulness means tuning in to what you are sensing at the moment.

The Institute for Mindfulness-Based Approaches, which offers a stress-reduction program based on intensive mindfulness training, teaches that while you can’t always change your circumstances, you can choose your response to them. By being in touch with present thoughts, sensations, and emotions, you can gain a different perception of what you’re going through.

Practicing mindfulness each day can help you perform your duties without becoming overwhelmed or overly stressed. It can help keep you grounded and at peace while allowing you to be of service to those in your care.

What are examples of structured mindfulness?

Examples of structured mindfulness include body scan, sitting, and walking meditations.

In body scan meditation, you lie on your back and focus attention slowly and deliberately on each part of your body, being aware of any sensations, emotions, or thoughts.

Sitting meditation is similar but it’s done while seated comfortably. You focus on your breath moving in and out of your body, concentrating on what you feel and think.

Finally, in walking meditation, you begin to walk slowly, focusing on the experience, and become aware of the sensations of standing and the subtle movements that keep your balance.

How do I incorporate mindfulness in daily life?

Ways to incorporate mindfulness into your everyday life include paying attention to your environment and taking the time to experience your surroundings with all of your senses. Another way is to bring your attention to everything you do. In other words, mindfulness means “living in the moment.”

Acceptance is also very importance — of yourself and the person you are caring for. Treat yourself the way you would treat your best friend. When you have negative thoughts, sit down, take a deep breath, and close your eyes. Focus on your breath as it moves in and out of your body. Sitting and being aware of your breathing for even a minute can help. Journaling your feelings and experiences can also help.


Last updated: July 29, 2020


Adrenoleukodystrophy News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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Özge has a MSc. in Molecular Genetics from the University of Leicester and a PhD in Developmental Biology from Queen Mary University of London. She worked as a Post-doctoral Research Associate at the University of Leicester for six years in the field of Behavioural Neurology before moving into science communication. She worked as the Research Communication Officer at a London based charity for almost two years.
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