If you are a woman who has a family member diagnosed with adrenoleukodystrophy (ALD), you may be wondering if you are a carrier of the disease. You may find the following ... Read more
If you or a family member has adrenoleukodystrophy (ALD), then one resource you may want to use is ALD Connect. What is ALD Connect? A group of clinicians, scientists, patients, ... Read more
If you and your partner are both carriers for adrenoleukodystrophy (ALD), or if one of you has a type of ALD (such as adrenomyeloneuropathy (AMN) or Addison’s disease), you may be ... Read more
If you know that you and your partner are carriers of adrenoleukodystrophy (ALD) and risk passing the disease to your children, you may be considering a prenatal genetic diagnosis. What ... Read more
Physiotherapy can be helpful to people with adrenoleukodystrophy (ALD), a rare genetic disease characterized by a buildup of toxic fatty molecules within cells. While there is currently no cure for ALD, ... Read more
If you know you are a carrier of adrenoleukodystrophy (ALD), or if you or your partner has ALD, you may want to speak with a genetic counselor about your pregnancy ... Read more
Developing treatments for rare diseases such as adrenoleukodystrophy (ALD) is extremely challenging. The small number of patients worldwide makes it difficult for researchers to develop and test new treatments. One way ... Read more
Adrenoleukodystrophy (ALD) is a rare genetic disease that can lead to neurodegeneration (nerve cell death) and adrenal insufficiency, among other symptoms. However, symptoms vary widely between types of ALD. Cerebral ALD, ... Read more
Adrenoleukodystrophy (ALD) is a rare genetic disease characterized by the buildup of saturated very-long-chain fatty acids (VLCFAs) inside cells. When the disease affects the brain, as is most often does ... Read more
Some states in the U.S. test newborns for adrenoleukodystrophy (ALD). This often is the first indication to parents that their child may have ALD. However, there are different types of ... Read more
