Health Insight

January 27, 2021January 27, 2021

Respite Care for CALD Patients

Health Insight

Providing care for a child with cerebral adrenoleukodystrophy (CALD) can leave you physically, mentally, and emotionally spent. At some point, your body and mind will need replenishing. Therefore, finding ... Read more

January 19, 2021January 20, 2021

Ways Extended Family Can Help in Care for Child With CALD

Health Insight

If there’s a child in your extended family with childhood cerebral adrenoleukodystrophy (CALD), you know how stressed and overburdened the immediate family is. Here are some ways you can help ... Read more

January 13, 2021January 13, 2021

Planning for Your Future With Adult-onset Adrenoleukodystrophy

Health Insight

Learning that you have adrenomyeloneuropathy (AMN), the adult-onset form of adrenoleukodystrophy (ALD), can come as a shock. Here are some steps you might want to take to help plan for ... Read more

January 6, 2021

How to Improve Your Sleep if You Have Adrenoleukodystrophy (ALD)

Health Insight

Adrenoleukodystrophy (ALD), a rare genetic disorder that primarily affects the nervous system and adrenal glands, can cause an array of neurological symptoms that can impair a patient’s ability to ... Read more

December 16, 2020December 16, 2020

Adrenoleukodystrophy and Exercise

Health Insight

Many patients with the adult form of adrenoleukodystrophy (ALD), called adrenomyeloneuropathy (AMN), experience weakness and stiffness in their leg muscles, leading to trouble walking. A careful exercise plan may ... Read more

December 9, 2020December 9, 2020

The ALD National Registry

Health Insight

Adrenoleukodystrophy (ALD) is a rare genetic disorder affecting around one in 21,000 males in the U.S. Researchers think that one in 16,800 women are carriers (have a copy of ... Read more

December 2, 2020December 2, 2020

Individualized Education Plan (IEP) for Children With Adrenoleukodystrophy

Health Insight

When adrenoleukodystrophy (ALD) occurs in children, it is called childhood cerebral ALD or CALD, and it leads to serious neurological disorders. Children with CALD may experience learning and behavioral ... Read more

November 25, 2020November 25, 2020

Tips for Dealing With Fatigue When You Have ALD

Health Insight

Fatigue is a common symptom for patients with chronic diseases such as adrenoleukodystrophy (ALD). Fatigue can be defined as extended periods of exhaustion leading to a lack of energy ... Read more

November 11, 2020November 11, 2020

Medications With No Clear Benefit for Adrenoleukodystrophy

Health Insight

A number of medications have been proposed as treatment options for adrenoleukodystrophy (ALD) and have had promising starts. However, further investigation in clinical trials showed a lack of benefit ... Read more

November 4, 2020November 4, 2020

Treatment Plan for Adrenoleukodystrophy

Health Insight

Adrenoleukodystrophy is a rare genetic brain disorder that has been categorized into three different forms: childhood cerebral adrenoleukodystrophy (CALD), adrenomyeloneuropathy (AMN), and Addison’s disease. If you or your child ... Read more