Health Insight

February 17, 2021February 17, 2021

Adrenoleukodystrophy and Diet

Health Insight

Adrenoleukodystrophy (ALD) is a rare genetic disease in which very long-chain fatty acids (VLCFAs) build up inside cells in males, causing a number of behavioral and neurological problems. Here is ... Read more

February 10, 2021February 10, 2021

Emergency Management of Adrenal Insufficiency in Adrenoleukodystrophy

Health Insight

An estimated 80% of men and boys with adrenoleukodystrophy (ALD) develop adrenal insufficiency — when the body does not produce enough of the steroid hormone cortisol. By comparison, only around ... Read more

February 3, 2021February 3, 2021

Paramedical Treatment for Adrenoleukodystrophy

Health Insight

If you or your child have adrenoleukodystrophy (ALD), you may benefit from paramedical treatments — services such as massage, and occupational and speech therapy, that have been shown to help ... Read more

January 27, 2021January 27, 2021

Respite Care for CALD Patients

Health Insight

Providing care for a child with cerebral adrenoleukodystrophy (CALD) can leave you physically, mentally, and emotionally spent. At some point, your body and mind will need replenishing. Therefore, finding respite ... Read more

January 19, 2021January 20, 2021

Ways Extended Family Can Help in Care for Child With CALD

Health Insight

If there’s a child in your extended family with childhood cerebral adrenoleukodystrophy (CALD), you know how stressed and overburdened the immediate family is. Here are some ways you can help them ... Read more

January 13, 2021January 13, 2021

Planning for Your Future With Adult-onset Adrenoleukodystrophy

Health Insight

Learning that you have adrenomyeloneuropathy (AMN), the adult-onset form of adrenoleukodystrophy (ALD), can come as a shock. Here are some steps you might want to take to help plan for a ... Read more

January 6, 2021

How to Improve Your Sleep if You Have Adrenoleukodystrophy (ALD)

Health Insight

Adrenoleukodystrophy (ALD), a rare genetic disorder that primarily affects the nervous system and adrenal glands, can cause an array of neurological symptoms that can impair a patient’s ability to get ... Read more

December 16, 2020December 16, 2020

Adrenoleukodystrophy and Exercise

Health Insight

Many patients with the adult form of adrenoleukodystrophy (ALD), called adrenomyeloneuropathy (AMN), experience weakness and stiffness in their leg muscles, leading to trouble walking. A careful exercise plan may help ... Read more

December 9, 2020December 9, 2020

The ALD National Registry

Health Insight

Adrenoleukodystrophy (ALD) is a rare genetic disorder affecting around one in 21,000 males in the U.S. Researchers think that one in 16,800 women are carriers (have a copy of the ... Read more

December 2, 2020December 2, 2020

Individualized Education Plan (IEP) for Children With Adrenoleukodystrophy

Health Insight

When adrenoleukodystrophy (ALD) occurs in children, it is called childhood cerebral ALD or CALD, and it leads to serious neurological disorders. Children with CALD may experience learning and behavioral difficulties, ... Read more