Posts by: Emily Malcolm

Health Insight

Adrenoleukodystrophy (ALD) is a rare progressive neurological disorder. Children with the disease lack an ability to process very-long-chain fatty acids (VLCFAs) due to mutations in the ABCD1 gene. Their brain function ... Read more

April 20, 2020April 22, 2020

Speech Therapy for Children with Adrenoleukodystrophy

Health Insight

Adrenoleukodystrophy (ALD) is a genetic disorder that affects the nerves and the adrenal glands. Your child may have difficulty speaking and swallowing. Some children with ALD are also troubled by ... Read more

April 13, 2020April 21, 2020

Tips for Dealing with Hearing Loss in Adrenoleukodystrophy

Health Insight

Adrenoleukodystrophy (ALD) is a severe heritable disorder that primarily affects males. Symptoms can appear early in life. The tissues most affected are nerves and adrenal glands. One symptom that some ... Read more

April 7, 2020April 8, 2020

Schooling Your Child With Adrenoleukodystrophy

Health Insight

If you are the parent of a child with a rare disease such as adrenoleukodystrophy (ALD), managing your child’s schooling and their disease can be challenging but can done well ... Read more

April 1, 2020April 1, 2020

Overactive Bladder in Adrenoleukodystrophy and How to Deal With It

News

Overactive bladder is a common problem in men with adrenomyeloneuropathy (AMN), a type of adrenoleukodystrophy (ALD), and also women who are carriers of the disease. What is overactive bladder? Overactive bladder is a ... Read more