Speech Therapy for Children with Adrenoleukodystrophy

Speech Therapy for Children with Adrenoleukodystrophy
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Adrenoleukodystrophy (ALD) is a genetic disorder that affects the nerves and the adrenal glands. Your child may have difficulty speaking and swallowing. Some children with ALD are also troubled by hearing loss, which can cause difficulty in understanding language.

Speech therapy may be required and can help in some cases.

What is speech therapy?

Speech therapy aims to help children and adults with speech and language problems. Similar to physiotherapy, speech therapy uses exercises to build coordination and to strengthen and improve range of motion in the muscles of the mouth, jaw, and throat.

Speech therapists work with patients to help with both speaking and understanding spoken language. Speech therapists also help patients improve muscle coordination for chewing and swallowing.

What should I bring to an appointment?

You should dress your child in comfortable clothes. Bring their medical records, including information on what medications they are taking and the dosages.

It’s also a good idea to write out your questions and goals for the speech therapy session prior to the appointment, so the therapist can address all your questions.

What should I expect of a speech therapy appointment?

The first appointment for speech therapy will include an evaluation of strength, muscle coordination, and range of motion of the muscles of your child’s mouth, throat, and neck. Your therapist will discuss what problems your child is having, the goals for speech therapy, and help your child to set some individual goals.

Your therapist may walk your child through a few exercises during the appointment. They will then develop an exercise program for your child to do at home, and discuss future therapy plans. Depending on your child’s age and needs, assigned exercises may include things like games, singing, or reading books aloud.

 

Last updated: April 22, 2020

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Adrenoleukodystrophy News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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