If you or your child have adrenoleukodystrophy (ALD), you may benefit from paramedical treatments — services such as massage, and occupational ... Read more
Providing care for a child with cerebral adrenoleukodystrophy (CALD) can leave you physically, mentally, and emotionally spent. At some point, your ... Read more
Caring for a loved one with a rare disease, especially during these uncertain times, demands significant time, attention, patience, and dedication. ... Read more
Butterflies, ballerinas, and abstract flowers are featured among the winning artwork of this year’s Rare Artist contest, hosted by the EveryLife ... Read more
If there’s a child in your extended family with childhood cerebral adrenoleukodystrophy (CALD), you know how stressed and overburdened the immediate family ... Read more
The National Organization for Rare Disorders (NORD) is seeking individuals willing to share real-life experiences with rare diseases to speak at ... Read more
Learning that you have adrenomyeloneuropathy (AMN), the adult-onset form of adrenoleukodystrophy (ALD), can come as a shock. Here are some steps you ... Read more
