Health Insight

November 25, 2020November 25, 2020

Tips for Dealing With Fatigue When You Have ALD

Health Insight

Fatigue is a common symptom for patients with chronic diseases such as adrenoleukodystrophy (ALD). Fatigue can be defined as extended periods of exhaustion leading to a lack of energy and ... Read more

November 11, 2020November 11, 2020

Medications With No Clear Benefit for Adrenoleukodystrophy

Health Insight

A number of medications have been proposed as treatment options for adrenoleukodystrophy (ALD) and have had promising starts. However, further investigation in clinical trials showed a lack of benefit or ... Read more

November 4, 2020November 4, 2020

Treatment Plan for Adrenoleukodystrophy

Health Insight

Adrenoleukodystrophy is a rare genetic brain disorder that has been categorized into three different forms: childhood cerebral adrenoleukodystrophy (CALD), adrenomyeloneuropathy (AMN), and Addison’s disease. If you or your child has ... Read more

October 28, 2020October 28, 2020

Planning for the Future When Your Child Has Adrenoleukodystrophy

Health Insight

You were likely prepared to hear your child was ill, but a diagnosis of a rare and progressive disorder like adrenoleukodystrophy (ALD) could still come as a shock. Among next steps you might ... Read more

October 21, 2020October 21, 2020

Just Diagnosed With Adrenoleukodystrophy, Now What?

Health Insight

A new diagnosis of a rare genetic disorder such as adrenoleukodystrophy (ALD) for your child or yourself can be frightening. Here is some information that may be helpful in understanding ... Read more

October 14, 2020October 14, 2020

Independent Living for Adults With Adrenoleukodystrophy

Health Insight

Having a chronic condition such as adrenoleukodystrophy (ALD) can be particularly concerning if you are living alone. But there are steps you can take to help you live well and independently. Learn about ... Read more

October 7, 2020October 7, 2020

Adrenoleukodystrophy and Sexuality

Health Insight

Adrenoleukodystrophy (ALD) and its adult-onset form, adrenomyeloneuropathy (AMN), can have both direct and indirect effects on a person’s sexuality. The following information may be useful as you manage this issue. ... Read more

September 30, 2020September 30, 2020

Adrenoleukodystrophy and Depression

Health Insight

Roughly 7% of adults experience depression every year in the U.S. People with adrenomyeloneuropathy (AMN), the adult-onset form of adrenoleukodystrophy (ALD) may be at a higher risk of depression or other ... Read more

September 23, 2020September 23, 2020

Warning Signs of Depression in Adrenoleukodystrophy Caregivers

Health Insight

It can be exhausting and stressful to be the parent or caregiver of someone who has a chronic disorder such as adrenoleukodystrophy. Because stress can trigger anxiety and depression, among other ... Read more

September 16, 2020September 16, 2020

The Spoon Theory for Adrenoleukodystrophy Patients

Health Insight

Adrenoleukodystrophy (ALD), a disease associated with neurologic dysfunction and adrenal insufficiency, often may cause you to be tired and stressed. Trying to explain to family and friends, many of whom ... Read more