Warning Signs of Depression in Adrenoleukodystrophy Caregivers

Warning Signs of Depression in Adrenoleukodystrophy Caregivers

It can be exhausting and stressful to be the parent or caregiver of someone who has a chronic disorder such as adrenoleukodystrophy. Because stress can trigger anxiety and depression, among other issues, it is vital that you practice self-care in order to stay healthy.

Following are some warning signs of depression. The severity, frequency, and duration of these symptoms depend on the individual. If you believe you have any of these symptoms, speak with your physician about diagnosis and treatment options.

Feeling hopeless

Depression is a common but serious mood disorder. It’s normal to occasionally feel down, but if you are always in a state of hopeless despair, or in an “empty” mood, you may be depressed.

Loss of enjoyment in social or leisure activities

If hobbies or interests that previously were important and enjoyable to you now feel like chores, or if it’s hard to connect with friends and family, you may be showing signs of depression.

Decreased energy, or fatigue

If you have fatigue or consistently low energy levels for weeks on end without a clear cause, you may be depressed.

Sudden weight change

If you have quickly lost or gained weight it may be a sign that something else is wrong. Depression can cause some people to lose their appetite or crave unhealthy or “comfort” foods.

Sleep issues

Some people with depression experience insomnia, making it hard to fall asleep or remain asleep. Others may have difficulty waking up and facing the day.

Changes in disposition

If you find yourself regularly in a sour mood or have constant feelings of agitation or restlessness, you may be experiencing depression.

Feeling badly about yourself

Another sign of depression could be feeling guilty for no reason, or putting yourself down, either internally or when speaking with other people.

Having difficulty focusing

Problems concentrating on problems or tasks, or remembering things, also can be signs of depression.

Experiencing aches or pains

Depression also can cause physical symptoms. For some people, this may include issues like back problems, stomach pains, or just feeling achy all over.

Feeling suicidal

Depression is a significant risk factor for suicide. If you have been having suicidal thoughts, please seek help as soon as possible. In the U.S., the National Suicide Hotline provides 24-hour support by phone, text, or online chat.


Last updated: Sept. 23,  2020


Adrenoleukodystrophy News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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Özge has a MSc. in Molecular Genetics from the University of Leicester and a PhD in Developmental Biology from Queen Mary University of London. She worked as a Post-doctoral Research Associate at the University of Leicester for six years in the field of Behavioural Neurology before moving into science communication. She worked as the Research Communication Officer at a London based charity for almost two years.
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